The Importance of Celebrating Progress for Your Child with Short Bowel Syndrome

“Parent” may very well be the most important and rewarding job title you will ever have. As a parent, you have three primary goals: (1) set a good example, (2) instill important values, and (3) encourage your child’s happiness. 

Navigating the early stages of child development and care can be both exciting and exhausting. Your precious bundle of joy comes into this world and they are entirely reliant on you to teach them everything. And as the days and months tick by, you’ll watch your little one meet a number of developmental milestones as they grow.

Families of children with pediatric short bowel syndrome (SBS) or other rare pediatric disease states, have the added responsibilities of their child’s daily care routine. It may often feel overwhelming. Having the right attitude is important so that you, your child and the rest of your family have the opportunity to enjoy the process.